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PML: JC Virus-Related White Matter Disease

Progressive multifocal leukoencephalopathy from JC virus infection in immunosuppressed patients

Written by: Saygı Hospital Health Guide Editorial Board
Last updated:

This content has been compiled by the Saygı Hospital Health Guide Editorial Board and is periodically reviewed by a specialist physician.

References (5)

This content is for informational purposes only and does not constitute medical advice. You can book an appointment at our Internal Medicine department. Book Appointment →

What is PML: JC Virus-Related White Matter Disease?

Progressive multifocal leukoencephalopathy (PML) is a subacute demyelinating disease of the central nervous system caused by reactivation of latent JC polyomavirus in oligodendrocytes, leading to multifocal lytic infection and white matter destruction. Up to 80% of adults harbor latent JC virus, but disease only emerges in profound cellular immunosuppression. Risk groups include HIV/AIDS with CD4 counts under 200, multiple sclerosis patients on natalizumab (especially after 24 months therapy with prior immunosuppression and JCV antibody positivity), solid organ and hematopoietic stem cell transplant recipients, and patients on rituximab, fingolimod, mycophenolate, or other immunomodulators.

Clinical presentation evolves over weeks to months with subcortical cognitive decline, hemiparesis, visual field defects, ataxia, aphasia, and behavioral changes reflecting multifocal supratentorial and cerebellar lesions. MRI shows asymmetric, confluent T2/FLAIR hyperintense subcortical white matter lesions without mass effect or significant contrast enhancement, often involving U-fibers; lesions are bilateral but asymmetric and progress over weeks. Diagnosis is supported by detection of JC virus DNA in cerebrospinal fluid by quantitative PCR (sensitivity 70-90% with specialized assays) or by brain biopsy showing demyelination, bizarre astrocytes, and intranuclear inclusion bodies in oligodendrocytes.

There is no specific antiviral therapy. Treatment focuses on rapid restoration of immune function: combination antiretroviral therapy (cART) for HIV/AIDS, plasma exchange or immunoadsorption to remove natalizumab, and reduction or discontinuation of immunosuppressants in transplant recipients. Immune reconstitution inflammatory syndrome (PML-IRIS) may complicate recovery, presenting with paradoxical worsening, contrast enhancement on MRI, and edema requiring corticosteroids. Mortality remains 30-50%, and survivors often have significant residual neurologic deficits. Newer experimental approaches include pembrolizumab and adoptive T-cell therapy targeting JC virus.

Symptoms

Subacute cognitive decline over weeks
Hemiparesis or hemisensory loss
Visual field defects or hemianopia
Ataxia and gait disturbance
Aphasia or other focal cortical signs
Behavioral or personality changes
Seizures in advanced disease

Risk Factors

HIV/AIDS with CD4 count under 200
Multiple sclerosis on natalizumab beyond 24 months
Solid organ or stem cell transplantation
Rituximab, fingolimod, or other lymphocyte-depleting therapy
Hematologic malignancy with profound immunosuppression
Prior immunosuppression with JCV antibody positivity
Idiopathic CD4 lymphocytopenia

When to See a Doctor?

If you experience any of the following symptoms, seek medical attention promptly:

  • New cognitive or behavioral changes in immunosuppressed patient
  • Subacute focal neurologic deficits over weeks
  • Visual field defects or hemiparesis on natalizumab
  • Ataxia or speech disturbance after transplantation
  • Seizures with multifocal MRI lesions
  • Worsening symptoms after natalizumab withdrawal
  • Routine MRI surveillance during high-risk therapy

Treatment Methods

01
Brain MRI with diffusion and contrast
02
Cerebrospinal fluid analysis with JC virus PCR
03
Brain biopsy when imaging and CSF inconclusive
04
Immune reconstitution through cART or immunosuppressant withdrawal
05
Plasma exchange or immunoadsorption for natalizumab-associated PML
06
Corticosteroids for severe PML-IRIS
07
Multidisciplinary supportive care and rehabilitation

Which Department to Visit?

You can visit our Enfeksiyon Hastalıkları department for these complaints. Our specialist physicians will create the most suitable treatment plan for you.

Learn About Enfeksiyon Hastalıkları Department

Let us help you

You can make an appointment with our specialists or contact us for your concerns.

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Health Disclaimer: The information on this page is prepared for general informational purposes only. It does not replace medical diagnosis and treatment. Please consult your physician for your complaints. Saygı Hospital does not accept responsibility for actions taken based on the information on this page.