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Pediatric to Adult Transition Care in Hematology

Structured handover for adolescents with sickle cell, thalassemia, hemophilia, and survivors of childhood leukemia

Written by: Saygı Hospital Health Guide Editorial Board
Last updated:

This content has been compiled by the Saygı Hospital Health Guide Editorial Board and is periodically reviewed by a specialist physician.

This content is for informational purposes only and does not constitute medical advice. You can book an appointment at our Hematoloji department. Book Appointment →

What is Pediatric to Adult Transition Care in Hematology?

Pediatric to adult transition care in hematology is the deliberate process of preparing young patients with sickle cell disease, thalassemia, hemophilia, immune deficiencies, and survivors of childhood blood cancers for adult-oriented health services. It usually begins by age 12 and is completed by the early 20s.

Without a structured transition, patients face fragmented follow-up, increased emergency admissions, treatment lapses, and worsening complications. Risks are particularly high in the first two years after transfer, when self-management skills, work, education, and identity issues converge.

Best practice models combine joint clinics with pediatric and adult teams, written transfer summaries, formal readiness assessments, peer mentoring, and dedicated young adult clinics in adult hematology departments.

Symptoms

Missed clinic appointments after transfer
Treatment non-adherence and rising complications
Anxiety about unfamiliar adult services
Lack of independent self-management skills
Difficulty navigating insurance, work, or education

Risk Factors

Childhood-onset chronic blood disorders
Survivors of pediatric leukemia or lymphoma
Cognitive or developmental difficulties
Limited family or social support
Geographic distance from adult hematology centers

When to See a Doctor?

If you experience any of the following symptoms, seek medical attention promptly:

  • When the patient turns 12 to start transition planning
  • When approaching final year of pediatric follow-up
  • When concerns about self-management or adherence arise
  • When emergency visits or unplanned admissions occur after transfer
  • When new adult-onset complications need specialist input

Treatment Methods

01
Joint pediatric and adult transition clinics
02
Written transition plan and medical summary
03
Readiness assessments and self-management coaching
04
Education on disease, medications, and red flags
05
Peer mentoring and young adult support groups
06
Coordination with mental health, school, and work supports
07
Long-term follow-up for late effects after childhood cancer

Which Department to Visit?

You can visit our Hematoloji department for these complaints. Our specialist physicians will create the most suitable treatment plan for you.

Learn About Hematoloji Department

Let us help you

You can make an appointment with our specialists or contact us for your concerns.

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Health Disclaimer: The information on this page is prepared for general informational purposes only. It does not replace medical diagnosis and treatment. Please consult your physician for your complaints. Saygı Hospital does not accept responsibility for actions taken based on the information on this page.